ISO/TR TECHNICAL REPORT 20055 First edition 2018-08 Health informatics Person owned document repository for PHR applications and health information exchange Informatique de santé-Depotdedocuments personnelspour les applications PHR et échange d'informations sur la santé Reference number IS0/TR 20055:2018(E) @IS02018 It license from IHS Not for Resale, 08/06/2018 08:22:30 MDT IS0/TR20055:2018(E) COPYRIGHTPROTECTEDDOCUMENT @ IS0 2018 All rights reserved. Unless otherwise specified, or required in the context of its implementation, no part of this publication may be reproduced or utilized otherwise in any form or by any means, electronic or mechanical, including photocopying, or posting on the internet or an intranet, without prior written permission. Permission can be requested from either IsO at the address below or Iso's member body in the country of the requester. ISO copyright office CP401·Ch.deBlandonnet8 CH-1214 Vernier, Geneva Phone:+4122 749 0111 Fax: +41 22 749 09 47 Email: [email protected] Website: www.iso.org Published in Switzerland @ IS0 2018 - All rights reserved Not for Resale, 08/06/2018 08:22:30 MDT IS0/TR 20055:2018(E) Contents Page Foreword ..iv 1 Scope 2 Normative references 3 Terms and definitions 4 Symbols and abbreviated terms ..2 5 Characterization of PoR technologies .3 5.1 Introduction .3 5.2 Considerations for the PoR implementation .3 5.2.1 General. ..3 5.2.2 Classification criteria of PoR implementations ..4 6 Potential uses for PoRs. .5 6.1 Clinical document exchange using PoRs .5 6.2 Personal health management. .6 6.3 Clinical research. .7 6.3.1 Use of PoRs to support information trading in clinical research .7 6.3.2 Searching CRIPs. ..8 6.3.3 Security and privacy .8 6.3.4 Authenticity and integrity of clinical information .8 6.3.5 Rewarding. .9 7 Case studies. .9 7.1 Kela pHR CARD .9 7.2 HeSeL :9 7.3 Blue Button Plus .9 7.4 My Health Record .9 7.5 My Kanta Pages. 10 7.6 Microsoft HealthVault 10 7.7 Apple Health app. 10 Bibliography 11 iii ut license from IHS Not for Resale, 08/06/2018 08:22:30 MDT